🤝 How to effectively engage patients in digital health technologies

Summary

• This guide highlights why digital health solutions must be co-designed with patients—not simply for them—to ensure relevance, trust, and adoption.
• It presents 13 core principles of effective PPIE, covering everything from early involvement and power-sharing to privacy, compensation, and inclusive communication.
• Rooted in evidence and developed through a rigorous multi-stakeholder process, it offers actionable advice and links to real-world tools, policies, and frameworks.

What this carousel covers

• Why PPIE is essential for successful digital health innovation and system adoption
• Co-designed principles for respectful, inclusive, and collaborative patient engagement
• Practical resources and examples (e.g. NICE, NHS Transformation Directorate, Involve Framework)
• Guidance on issues such as IP, reimbursement, evaluation, digital inclusion, and data privacy

Key takeaways

• Involve diverse patients early and continuously, and approach engagement as a shared partnership
• Build flexible, responsive processes that value people’s time, insights, and lived experience
• Trust, transparency, and clear feedback loops are foundational to effective and ethical PPIE
• Successful PPIE is not just good ethics—it leads to better products, stronger evidence, and greater adoption

‍